The Jones Girls

I took Amanda to see the spinal doctor  @ Children’s Hospital in Los Angeles.   Her posture leans to the right, which is the club radial hand side.    I wanted to make sure she doesn’t have any spinal issues due to the posture.  She also has a dimple at the tail bone of her spine between her but cheeks. 

She had X-Rays done and the Spinal Dr. said everything looks fine.    He said the dimple is totally normal and no concerns.    He said signs for concern would be if the dimple was not centered, which is an indication that the spine might not be straight or if the dimple was never closed and looked really alarming.  Amanda’s looks normal. 

There are  different things that can be associated with Club Radial hand such as kidney problems or even absence of a kidney, vertebrae problems in spine, heart problems, renal failure problems, bladder problems and more conditions too.    I haven’t had Amanda’s kidneys checked, but I really don’t think she has any kidney issues.  She has no problems going to the potty and potty trained herself when she was 2-1/2 years old.  She doesn’t even need to wear a pull up at night she holds it all night long.  Yay!!

 When Amanda had her 2 genetics test done after birth plus I had fetal testing (CVS) while pregnant, all indications showed there is no genetic or chromosomal issue.  I had 2 different visits with Amanda’s geneticist, once at birth and a follow up when Amanda was 1 year old.   Amanda has club radial hand only on the right hand.   The geneticist told me that if she had club radial hand on both sides, it would probably be related to a syndrome of some kind, which is usually genetic or chromosomal.    The geneticist’s final conclusion and diagnosis is that Amanda’s club radial hand is an anomaly – unexplained.

 So in a nutshell, I am thrilled that Amanda’s spine is doing well and that we don’t have to worry about that.  We do have to help her work on her posture, but the doctor said it won’t affect her spine – thank goodness!!   There is enough to worry about raiding her with her club radial hand condition.